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Useful sites for asthma

Saturday, July 1, 2017

HCP education and resources

European Lung White Book

Examines lung health and disease, published by the European Respiratory Society, using data from WHO and the European Centre for Disease Prevention and Control

Global Asthma Network – The Global Asthma Report 2014

Provides information and recommendations to authorities on required actions to improve asthma care across the world

Online audit tools

A set of medical audit tools for primary care practitioners to assess and improve patient management

World Health Organization – Global Alliance against Chronic Respiratory Diseases

Voluntary alliance of national and international organisations, institutions, and agencies working to reduce the global burden of respiratory diseases

Guidelines and positioning statements

Chile: National Asthma Guidelines (2013)

Note: the guidelines are in Spanish

Scientific journals

Allergy (European Journal of Allergy and Clinical Immunology)

Focuses on basic and clinical allergy and immunology 

American Journal of Respiratory and Critical Care Medicine

Covering human biology in addition to animal and in vitro studies to understand respiratory diseases

The Brazilian Journal of Pulmonology/Jornal Brasileiro de Pneumologia

Covers a range of articles on pulmonology
Articles are published in English, Portuguese and Spanish

Chest Journal

Publishes research in the multidisciplinary specialities within chest medicine

European Respiratory Journal

Covers a wide range of respiratory medicine topics

European Respiratory Review

Open-access journal publishing reviews, meeting proceedings and editorials in respiratory medicine, science and surgery

International Journal of Nursing Studies

Focuses on healthcare delivery, organisation, management, workforce, policy and research methods

Journal of Asthma and Allergy

Publishes on a range of topics including asthma and pharmacological interventions and new therapies

npj Primary Care Respiratory Medicine

Published in partnership with the Primary Care Respiratory Society UK in conjunction with the International Primary Care Respiratory Group

Portuguese Journal of Immuno-allergology/Revista Portuguesa de Imunoalergologia

Focuses on research in allergology and clinical immunology

Portuguese Journal of Pulmonology/Revista Portuguesa de Pneumologia

Focuses on respiratory diseases in adults and clinical research - English version

Respirology

Aims to bridge the gap between scientific research and clinical practice in respiratory biology and disease

Thorax

Covers a wide variety of respiratory medicine topics

Scientific organisations

Allergic Rhinitis and its Impact on Asthma (ARIA)

Working group, in collaboration with the WHO, providing evidence-based guidelines on allergic rhinitis and asthma

American Thoracic Society (ATS)

Aims to improve global health by advancing research, clinical care and public health in respiratory disease

American College of Allergy, Asthma, and Immunology (ACAAI)

Dedicated to the advancement of the knowledge and practice of allergy, asthma and immunology for optimal patient care

Latin American Thorax Association (ALAT)

Organisation dedicated to reducing the burden of respiratory diseases through research, education and patient care
Note: the website is in Portuguese

Asian Pacific Society of Respirology (APSR)

Organisation aiming to improve clinical practice through meetings, publications and research

Balearic Group of Family Physicians, Nursing and Paediatrics/Balears Respira

Spanish society of primary care doctors and nurses focusing on the management, teaching and research of respiratory disease
Note: the website is in Spanish

British Thoracic Society (BTS)

UK-focused society that aims to improve the standards of care for people who have respiratory diseases and to support and develop those who provide that care

European Academy of Allergy and Clinical Immunology (EAACI)

Association including over 50 national allergy societies from 121 different countries aiming to promote education, basic and clinical research and good patient care

European Asthma Research and Innovation Partnership (EARIP)

Partnership made up of 12 European-based organisations aiming to improve asthma outcomes through research

Global Allergy and Asthma European Network (GA²LEN)

Consortium of leading European research centres that specialise in allergic disease

European Respiratory Society (ERS)

International organisation of physicians, healthcare professionals and scientists working to improve knowledge of respiratory health

International Primary Care Respiratory Group (IPCRG)

Aims to raise standards of care through collaboration on various topics including research, education and advocacy

Respiratory Effectiveness Group (REG)

Investigator-led research initiative focusing on real-life research to inform meaningful practice guidelines, and drug licensing and prescribing decisions

Society of Respiratory in Primary Care/Sociedad de Respiratorio en Atención Primaria (GRAP)

Spanish-based society aiming to promote research and teaching of respiratory health

The Union – The International Union Against Tuberculosis and Lung Disease

Global organisation advancing solutions to public health challenges affecting people living in poverty with tuberculosis and lung diseases such as asthma

World Organization of Family Doctors (WONCA)

Not-for-profit organisation working in collaboration with the WHO to represent primary care practitioners around the world

Patient management tools and resources

Action on Smoking and Health (ASH)

Information on the impact of smoking on health, and resources for smoking cessation

Active Life with Asthma (ALMA) Tool

Publication of the ALMA tool, designed to add structure to patient visits and the assessment of asthma treatment within primary care

A–I of difficult-to-manage asthma checklist

An alphabet acronym checklist to aid management of asthma and COPD in primary care, with a focus on difficult-to-manage asthma

Asthma and Respiratory Foundation NZ tools

Information for healthcare professionals to teach patients self-management skills

Control of Allergic Rhinitis and Asthma Test (CARAT)

Questionnaire to assess patients’ degree of control of allergic rhinitis and asthma
Note: available in English, German and Portuguese

International Primary Care Respiratory Group – Treating Patients

Information to aid healthcare professionals in the management of patients with various conditions, including asthma

Primary Care Respiratory Society UK (PCRS-UK) – Nurse Tools

Resources to manage patients with asthma, including a clinic checklist and information on therapy management

Measurement of Health-Related Quality of Life and Asthma Control – Questionnaires

Note: requires registration to download questionnaires

THINK. ACT. BREATHE. Campaign

Interactive website designed for patients to assess their risk of asthma exacerbations

Example asthma action plans

Asthma Society of Ireland

Note: access requires membership (free to join)

Inhaler device resources

Asthma Australia – YouTube Channel

Covering a range of topics such as inhaler technique, patient information and educational content for healthcare professionals

Aerosol Drug Management Improvement Team (ADMIT)

Information on inhalation techniques for various asthma therapies, including ‘dos and don’ts’, developed by European clinicians

Asthma Society of Ireland – Inhaler Technique Videos

Short educational videos on correct inhaler techniques for both patients and healthcare professionals

Asthma UK – Using Your Inhalers

Information, directed at patients, on inhaler technique with several videos on how to use inhalers

How To Use Inhalers

Online interactive guidance and training on inhalation therapy for respiratory diseases, created by an independent healthcare organisation
Note: multi-language website

Inhaler Research Workgroup (IRW)

Dutch interdisciplinary research group aiming to improve inhaler technique in patients with asthma and COPD

Medicininstruktioner

Short educational videos on correct inhaler techniques for a variety of inhaler devices
Note: the website and videos are in Swedish

UK Inhaler Group

Organisation working to promote the correct use of inhaled therapies to improve patient outcomes

Patient information

Asthma UK – Resources

Resources developed by healthcare professionals and people with asthma, designed to give patients a better understanding of their asthma and how to benefit the most from their treatment

AsthmaTrak – Patient Information

Patient information developed by internationally recognised experts in the primary care management of patients with asthma

BMJ Best Practice – Asthma in Adults

Fact sheet for adult patients to refer to when discussing therapy options with their primary care practitioners 

European Federation of Allergy and Airways Diseases Patients’ Associations (EFA)

Patient-led advocacy and action organisation consisting of 41 patient association groups from 25 European countries

European Lung Foundation (ELF)

Aims to bring patients and the public together with respiratory professionals to positively influence lung health

End Asthma Deaths

Blog by a primary care practitioner dedicated to educating healthcare professionals and people with asthma

NHS Choices – Asthma: an animation

Animation providing detailed information on asthma